ROAD TRIP!!!!! and other things

This is when we found out that she was allergic to Cedfinir also

So some more news on the allergic reaction front. It turns out that Aly is also allergic to the Cefdinir along with the Amoxicillin. Since she has had an allergic reaction to both Penicillin's and Cephalosporin's the doctor has told us that she cant have any of these antibiotics.

Aly in purple, Lily in pink and their great grandparents

Luckly we got her reactions under control in time for us to take a trip down to IN to see my grandparents. It was just my mother, sister, her daughter, Aly, and myself. An all girls trip! It was actually alot of fun. The two main reason for taking the trip down was A) for my grandparents to meet my sisters daughter and B) To spend some time with our grandfather who's health has been on the rocks. I was a bit bummed that Aly really didnt want nothing to do with my grandfather but she has only met him twice her whole life so what can you do? 

A then and now pic of Bella

 So we have also had Bella for almost 7 weeks now and its been going great. She does so good with Alyzea! Aly is in her face all the time or pulling on her tail and Bella just takes it. Bella also gets so happy to see Aly when we get back from some where or even when Aly gets up for the morning or from her naps.

Ear infections, pneumonia, and allergic reaction OH MY!!!

Yep just like the title says Aly has had all three in a week.

Sitting with mommy and Bella

Last Wednesday morning at 12 am Aly woke up majorly congested. It was so bad she ended up getting sick and bringing up alot of the drainage she had. Mommy and Aly also ended up sleeping in a chair because she just couldnt sleep in her crib even with it prop up. She also ended up getting a fever around noon that day. So I took her to the ER because we couldnt get into the doctors. At the ER we found out that she had a double ear infection and an URI. They did a Chest Xray and the radiologist thought she may have the beginnings of pneumonia but the ER doctor told me that she didnt. We were sent home with Amoxicillin and told to follow up with her family doctor.

Because I didnt feel comfortable with someone saying she had pneumonia and then someone saying she didnt I called her family doctor and got her an appt. for Thursday and I also got a copy of her Xrays to have her family doctor look at.  . All Wednesday she kept fighting her fever. It didnt seem to want to go below 101 and the highest her temp got was 103.7. She wasnt sleeping good at all and so her and mommy slept in a chair again. When we got to the doctors I gave the nurse the CD and asked if she could have the doctor look at the xrays before she came in. Well the doctor came in not long after that and told us she didnt need to look at the CD because the final report that came in said she did have pneumonia in her upper left part of her lung. She told us to stay on top of the tylenol and motrin for 24 hours straight. Tylenol every four and motrin every six hours, and if by friday at 4 pm it still hasnt gone down we were to call the office back. Well that night her fever broke and we were able to move to our beds in the early morning. 

All weekend long she has been doing great. She has been her happy little self and with how she has been acting you would never had known that she was sick. 

She had a follow up today at her doctors and when we got there we noticed that Aly had a rash all over her stomach and back. When the doctor got into the room we showed her the rash and it turns out that Aly is allergic to Amoxicillin. So she was taking off of that and put on Kelflex(sp?). Her lungs sounded great so the pneumonia has pretty much cleared up, but her right ear drum is still bulging out so her ear infection hasnt cleared up in that ear yet.  

Long over due post.

Wow I cant believe it has been so long since I made a post on how things have been going!

So alot has happened the last few months. Some sad and some good. Where to start off?? well lets do the bad first.

Alyea and her Grandpa

On March 3rd Alyzea lost her grandfather after a month long battle in the hospital. He went in to have a cath put in and two days after that he had a heart attack. When he was in the hospital they also found out that he had phonmuna(sp) in one of his lungs. Two weeks later after they had done a heart cath to see the damage the heart attack had done he suffered from a stroke. It was then we also found out that he had Cdiff and they had to put a feeding tube in his stomach. After about a week in the hospital they moved him to carelink. For a bit there he was able to do the therapy they wanted him to do, but then his body stopped doing anything. The Cdiff wasn't clearing up, dialysis was making him weaker  and his food wasn't digesting like it should have been. When his family made the decision to stop dialysis and make him a DNR it didn't take him long at  all to pass. From what we have been told he didn't suffer and that make us feel just bit better. Both Rob and his family are taking it one day at a time. His mom is so use to taking care of his father that she hasn't known what to do. 

Bella not long after we got her

So a week later we got the family a puppy. They say they got it for Alyzea and that it was her puppy but I believe its for all of them. Her name is Bella and she is a 15 week old beagle/black lab mix. I couldnt have asked for a better puppy for the family. She does so good with Alyzea and she just loves Bella.

Because of what had happened to his dad Rob never went back to work. He has been taking care of his mom and at the time his dad also. So now he is a Stay at home dad. Around the time his dad had is stroke I started working at Allegiance Health Hospital as a Diet Aide. I really love this job, I help paitents order food and bring it to them when it comes up from the kitchen. It is actually a job I like going to everyday, and working here I found out that the hospital has taking to doing a pulse ox test on the all the newborns 24 hours after they are born to screen for heart defects. I was SOOO happy to hear this.... 

How big Alyzea has gotten

GREAT NEWS!!!!

Going to see Santa

Wow I have been so busy lately that I just havent had time to do what I normally do. So I havent had time to get on here and tell the great news about Alyzea's cardiolgist appointment.
We saw Dr. Loker on the 4th of this month. Since they did a echo on her back in October, when we were in the hospital they didnt do one this time. He came in and told us that Alyzea's pressure gradient went from 40 to 33! It was so awesome to hear that, All they told us when we were in the hospital was that the echo came back good. Dr. Loker happened to be out of the office at the time so thats why we didnt see him when we were there. He also mentioned that when they echo she was running a fever and was sick, and that there is a chance that her gradient might actually be lower then what it was at the time of the echo. The other great news we got that day was we have been graduated to 6 month appointments! She has been doing so great I am so proud of her. 

Holding both the girls

Ally trying to rock Lily

In other news, rob has been doing great after his surgry. He has some pain in his lower back but we think that might be because he cant sleep the way he normally does at night. My sisters baby has also been doing great. Ally and myself spent the night with the two of them at our parents house the other night. I helped my sister with the baby giving her some rest. I have been nerves that Ally might be mean to Lily but she did great with her. We got Lily's newborn, Ally's 1 year, and the girls Christmas pictures done when we were together. We took the girls to see Santa but Ally wanted nothing to do with the man.

Introducing Miss Lily!!!!

So my sister had her baby on Nov. 28th! It was the greatest thing being there with her when she was in labor. Dee did have some complications, she was in labor for over 24 hrs and she only dilated to 5 1/2, and that is with pitocin(sp) running for 4 hours. The baby's heart also was dropping to around the 86 so they decided that a c-section would be the best route to take. Dee's boyfriend is not someone who can handle blood so he ask if I could go in with Dee. So I got to go in with her and be the first person to see and met Lily. Being in the room when she was having a c- section is something I never thought I would do, and without a doubt I would do it again. It turns out that Dee's hips are to narrow and Lily wouldnt have been able to be born naturally.
Both mom and baby are doing great, my sister is acting like nothing happened to her and has been handling the pain great. All of baby's test have come back great and they made sure to check her heart which also has come back good. That right there takes alot off my shoulders. Knowing that my sister wouldnt have to go through what I went through.
The other thing that keeps playing in my mind is that fact that me and my sister both have a beautiful baby girl. It's so unreal thinking about her and me having children.

Just thoughts and random things

So alot have been going on but it is not based on Alyzea so much. She was in the hospital over night for a fever and an ear infection. The only reason why we had to stay was because her heart rate was up and the ER doctor wasnt sure if she felt comfortable sending us home. As much as we dont like staying at hospitals I would rather be safe then sorry. She has also taking off walking like she has been walking for years. She is so small and cute walking like she does.

As I said alot has been happening. Rob aka daddy, had a cervical fusion done last monday. Everything went great and he has been doing good. He is not liking the fact that he cant hold his baby. When I took Alyzea to see him in the hospital she wasnt happy in his room, so I am thinking that she has some anxiety to hospitals, can you really blame her?

Sometime this month my sister is having her baby. I cant wait to meet Lily, it is going to be so cool having a niece around here. I really wish that my other niece and nephews could be around more.

So I have been thinking about doing something for CHD awareness week, I know that its not till February but I got to start it now so that when that week comes I can have it done. I am thinking that I am going to collect pennies from now till then, once that week comes I am going to turn in all the pennies and the money that I have collected I am going to give to Mott's as a donation. I get so tired at seeing things for cancer, and stuff like that but nothing on CHD. DONT GET ME WRONG, having a child going through anything like cancer or a heart defect is wrong, and children shouldnt have to go through anything like that. I just hate seeing that they will promote other things but people never really promote for CHD, but I cant sit here B*t*hing about it, I have to get up and start doing something. Its just going to be hard cause I have always been a follower not a leader.

HAPPY FIRST BIRTHDAY ALYZEA!!!!!

Alyzea and her dad

Well her actual birthday is tomorrow but we had her party today. It was a bit depressing cause the weather wasnt that good, but we made the most of it and it turned out to be a great day. I really didnt have to worry to much about Alyzea getting cold because she holds heat like her dad does.

 She got a lot of clothes and a good amount of toys. She loved smashing the cake! she didnt eat to much of it but she just loved playing with it. What I really loved about today was my close friend has a disabled son, and Alyzea just loved him. When I was talking to him she just had to come and sit with him and me. There was a time where she actually wanted to sit on his lap. When we put her in his lap she leaned down and gave him kisses. I just cant believe that she is turning one tomorrow! I love her so much....

Giving Kisses to Noah

Getting all over him

Sharing our cake together

mommys little monkey

I love this pic of her and her dad!

She has also started to walk by herself. I my self consider her to be a walker. She crawls a lot still but she is taking about 15 to 20 steps at a time now. She is also pulling herself up and instead of dropping to her knees to crawl she has be just turning around and walking instead.

Again the pics dont want to go in any kind of order!!! sorry!