We Got the Beat! day full of fun...

Alyzea in her We got the Beat shirt.

So today Mott's had a picnic for all of the heart patents, and let me tell you they go all out for these kids. Even though Alyzea was to young for anything it was just great to walk around and meet new people. Adam and Jessica came with me and Alyzea in the morning but had to leave cause Adam had to work today. After they both left me and Alyzea walked around and then got our picture taken and had lunch. After lunch I met up with a mom and her family that I met online. It was great being able to talk to someone that is going through pretty much the same thing as us. It was my actual first in person conversation with another parent of a heart baby. Do to some problems at work rob got to us a little later then he had hope but it was fine. He was able to eat and look around.

Trying to get the pony with cousin Adam

While rob was eating we ran into Dr. Thor Thorrson(I belive thats how you spell his last name). Dr. Thor was the leading Dr. for Alyzea when were at Mott's for the first time. What really got me and Rob was that after only meeting us for one week 7 1/2 months ago he remember us. All we had to tell him was what was wrong with Alyzea and insistently he knew who we were. He sat down with us for a bit and ask how Alyzea was doing and while he was talking to us he laid his hands on Alyzea's chest and was feeling her heart beat while she slept, checking her over. All of the doctors are awesome at Mott's and I am happy that we go there. But I cant forget Dr. Loker either, he was the one that found that there was something wrong in the first place. 

On a side note.... I would like to point out that last week Alyzea started to crawl. She may not be crawling on hands and knees but she is crawling in her own way that is very cute. We go to her check up on monday so we will be able to see how much bigger she has gotten. 

 

Alyzea's first time swimming

mommy and Alyzea in the pool

So yesterday we took Alyzea to my parents place to go swimming. You could tell that she wanted to play and have fun but the water was just to cold for her. She was in there for about 5 minutes then we got her out and she sat in a chair and played with her grandma. 

Spending time with daddy

In other news Alyzea is starting to really become mobile. She is now laying on her tummy and sliding backwards, going from a sitting postion to laying on her tummy, and she has also started to go from laying on her tummy to getting back into a sitting postion.  Sometimes I think she might bypass crawling all together and go straight into walking. I have been holding her hands and letting her "walk" to things and she loves it. So at the end of the month we go to her wellness check and she how she is doing.

A Day at the Park

So today Alyzea and I went to the park with her grandparents and her aunt Dee. She is still a little to young to be able to play on anything but Dee and I grab a blanket and had her going down the slide. 

The parents dogs arent use to being around babies but they have been doing really good around her and she is loving them. She was a bit cranky so she ended up taking a nap for about an hour. It was just a really nice day being able to relax and enjoy spending time outside. 

On a side note Alyzea seems to be doing great, she has started to move from a sitting position to laying on her stomach so pretty soon my sweet little angel will be getting ready to crawl. She has been eating great and just over all being a happy baby. 

My very first mother's day.

Alyzea and Rob made this day really special. We didnt do much, we had a cookout with the family but it was still just a great day. Rob let me sleep in this whole weekend, got me some beautiful flowers and picked out two cards that made me cry. The card he got me from him was just so sweet, it was straight from the heart. The card he got for me from Alyzea played the song "You'll be in my heart" and once I heard it I just started to cry.

My flowers and my card's

 When I had left Bronson the day Alyzea was being airlifted that song was on a cd I had made for her. Once we got to the part in the song were it says "For one so small you seem so strong. My arms would hold you keep you safe for harm." I lost it and I knew that, that song will forever hold a spot in my heart and it became our song. 

Today was just a great day. I never thought that I would become a mother and I thought that this would have been a day that I never got to celebrate. Having Alyzea and Rob in my life is the greatest thing anyone could ever ask for and I love them both so very much. 

I think we are back on track!!!

So I think that we might be on track again with this eating solids thing. I have been waiting to say anything till we got a couple of days in, Alyzea likes to make me think that we are starting to do something new and then when I think everything is going good she stops. It never fails....

She shows interest in food, always have. These last few months I was just not able to to get her to eat like she should. I was scared to do what others mothers said, like giving her chunkier foods. I tried to give her a really small piece of an apple and she gagged on it. I had it in my mind that I wasnt going to feed her chunkier foods and risk having her choke. I would rather her have to see a specialist then something bad happen to her.

Her eating her food this morning

Well on Thursday last week I took a banana cut off a piece and mashed it up. Gave her a bite and she loved it. She was eating it and was having no problems with choking. So I figured what the heck lets add some fruits to the banana. I added Apples and blueberries and she ate almost all of it. Seeing that she was eating her foods like this I wanted to make sure that having banana's in it wasnt going to be a problem. So I called her doctor to check, and they told me that I was in the clear to have her eat like this. 

So for the last few days Alyzea has been eating like she did when she was 4 months old. Yesterday I also introduce those Gerber's yogurt bites, I break them into smaller pieces and she loves those. I am just happy to see that she has started to eat again.   

A new face she has started to make

She did so good

So today we took Alyzea to a funeral. Robs uncle past away in his sleep earlier this week. When we had gotten there Rob's dad took her to sit with him and all through the services I was listening ready to get up and go get her once she started to cry. It never happened, through the whole thing she was a an angel and didnt make one sound. 
It really sucks that we had to take her, but its the facts of life and you cant run from it. Its really sad to see family passing away.

Alyzea's Cardiologist Appointment today

So Alyzea had her appointment today with her cardiologist. She is now 26 inches long, and 15.5 lbs, and everything looked great! Her pressure gradient went from 55 to about 40!

 After he did the echo he was thinking that her gradient hadnt changed and he was getting ready to call Mott's again but as I was was getting her dressed he looked at her chart and saw that we had a decline in the pressure. So now we go back in 4 months and see how she is doing then. It feels good knowing that we dont have to go and have her heart ballooned again so soon. I am hoping that we wont have to do it till after her 1st birthday. 

Which it just dawn on me that my little girl will be a year old in about 5 more months!! time is flying......