No time

Because I am in school full time and work part time, I decided to put this blog on the back burner. I just don't have the time for it.
I am on Facebook everyday so I decided to make a page on there for Ali, I am hoping it will be easier to maintain.  The page address is

https://m.facebook.com/pages/One-Tough-Lil-Girl-A-CHD-Warrior-and-a-TS-Butterfly/1442752652713292?ref=aymt_homepage_panel&__nodl

We found the problem.

So back story. When Ali was in the hospital for the first time (back when she was in CHF at 6 weeks old) They mentioned to me that they were going to do a genetic test on Ali. Well 5 days later we left the hospital and never heard anything back. Till now.

Early this month we went to see a geneticists, with Ali being behind, and nonverbal, and having the problems with her QT's being long. Well Wednesday I got a call from the doctor and she asked me if I knew that Ali had a genetic test done back in 2011, I told her that I did but never heard anything back from it so I believed everything to be ok. Well that is not the case, it turns out that Ali has Turners Syndrome and that the hospital knew this but never sent papers to anyone, not me, not her cardiologist, not her pediatrician. So for the last 3 years my daughter has not been getting the right care. 

Thursday morning her cardiologist called and told me how they found out this news, on top of being in shock himself. It turns out that both hospitals use the same system and when he sent his paper work over to the geneticist the other hospitals paper work was sent. When he heard from the genetics clinic he went through his paper work and when he didnt see anything there he searched the other one and thats where it was. 

So now that we have a reason for all of Ali's problems we can treat them correctly. We will be seeing a endocrinologist and a orthopedic. We go back to the Genetic clinic in June and will be going over everything then. 

Feeling on all of this, I am happy to have a reasoning for all of this, I am sad that my daughter will never be able to have children herself, and I am angry that we were never told anything about this. They should have told us, but instead we get a shock like we did when she was in CHF. 

ENT or Audiology? that is the question....

Tell you, time sure flies when you are having fun right? 

Back in the beginning of December Ali had her right ear tube come out; and not even a month goes by and she has an ear infection in it. The infection was so bad that she ended up perforating her ear drum and had drainage with it. Two weeks after that she she had both tubes out and was doing good. Last Monday she was screaming through out the night. When she was going to bed she cried for two hours straight and then woke out two hours after falling asleep screaming all over again. Tuesday her father took her to the doctors and it turns out that she perforated her right ear drum again and had yet another ear infection. This makes 2 in a 3 month period. So now we need to figure out what needs to be done. The most likely thing is going to be tubes again. Something that I never noticed till after her ear drum popped was her behavior and her sleeping. Two weeks proir to the ear infection Ali was having a really hard time sleeping at night. She was getting up at all hours of the night and staying up for very long periods of the night. I never once thought that it could be the fluid that was causing all her sleeping problems and now I am wondering if this has been part of her problem from the very beginning? When it comes to her behavior it was her teacher that mentioned that was why she was having behavior issues at school and at home. I noticed that she was acting a little bit different prior and after her ear popped she became the happy go lucky little girl she always has been. The major concern we are having now is her falling behind on her speech. She has been making great strides when it comes to speech and now that she is having more infections, both her teacher and I are worried that this is going to damper her speech. So the 17th we go for a follow up and we are going to talk about our options. Her pediatrician said something about either going back to the ENT or going back to audiology and seeing what they have to say.

We are also all set in going and getting gentic testing done in April. I have been beating myself up about feeling like I was going behind our cardiologist, but if there is a chance that they may be able to explain some of Ali's problems it is so worth it. So look for that post at a later date. 

As for myself I am into my 4 week of school and I feel very good about it. I have it in my mind that I am going to seceded this time and not mess up like that last time I tried to go to college. So I really dont have a life outside of my daughter, school, and working part time lol. But it is going to be so worth it in the long run. So this is my apologie in advance that I really may be absent from the blog.

BIG ACCOMPLISHMENT!!!!

SORRY FOR THIS BEING IN CAPS BUT I AM JUST TO HAPPY THAT I CANT STOP!!!!!!

ALI COMMUNICATED TO US!!!!

Well she communicates with us by saying please and thank you or pointing at things. But last night she actually "told us" what she wanted. She has these pie pieces that go with a tea pot her second cousin got her for her birthday. For the longest time she has been missing one piece to the pie set. Well she grabbed her dads hand and pulled him to the couch and was signing "eat" while trying to look under the couch. Well I got up and looked under the couch and there was the missing pie piece. When I give it to her after I got it out she started to "eat" the piece. It wasnt till after I sat back down did it click that she had actually communicated with us. She didn't know how to say pie piece or whatever, so she told us the only way she could that "food" was under there.

I was so happy that I had to call her preschool teacher on her day off and tell her what Ali did. I have been going crazy thinking about it and I just cant stop feeling pride in my little girl.

All clear from the cardiologist!!

watching while we did the EKG

So I took Ali to the cardiologist today to go over what happened last week. She has been her normal self this week so I wasnt really thinking anything was wrong but better safe then sorry, and it turns out that she is all good. Her pressure gradient is still mild to moderate, there was some concern last time because they were getting different readings for her pressure. But the versed wasnt working that good last time. This time it worked great and they were able to get a good reading. He is happy with how well she is doing. While they were doing the echo he was going over all her old EKG's, it turns out that her QT's are long, but that she doesnt have prolong QT syndrome. He says that he doesnt see that being a problem and that the only thing we need to worry about is what meds she is allowed to take. I have a very long list of those and of course that means that zithromax is back on that list. So that means that the only thing Ali is allowed to take now is Bactrim for any infections that she gets. I know that I should have been so happy that at our last appointment( back in April) he graduated her to a year, but I am happy that we were able to get her in this week. I wasnt ready for yearly check ups, with her being non verbal it makes it hard to find out what is hurting her and what is wrong. We go back in April for our next check up. 

I know I have said this before, but I love this office. Everyone is nice and laid back. They remember everyone also. Heather, the lady who had done Ali's very first echo had to come in and see her because she was finding it hard to believe that Ali was 3 years old. Dr. Loker gave his phone to Ali so that he was able to listen to her heart and was telling me about different apps for my phone that I could download for her. 

Playing with her Cardiologist phone

Ugh, really need to post more

I have been really slacking on the blog front. But the nice thing about it is now I have the laptop back so it will be easier to keep updated more. 

So last month my baby girl turned 3. She is getting bigger and bigger everyday. She is still not talking but she is starting to do better with telling us her wants using different means. We just had parent teacher conferences and everyone is happy with the progress that she has made, and she has come a along way from the first week of school.

As of right now she is 30 lbs and is around 2 1/2 feet long. Everything went good with the pediatrician and they are happy with where she is right not. A week after her wellness check we went to her ENT and her right tube has come out and the left tube is still in place. Hopefully we dont go back to what happened before she had the tubes in. We haven't seen the cardiologist since Apirl, but do to behavioral issues that have been going on this last week we will be going to see him next week. 

All this last week Alyzea has been very cranky. She was waking up at all hours of the night and crying for atleast an hour before she would relax. Sometimes we would have to give her Tylenol and then she would be fine. She was also having low grade fevers off and on through out the weekend. She went to school one day and out of the blue she started screaming and wanted to go home. Nothing the teachers did made her happy and they even had other teachers coming out of their classrooms trying to help calm her down. Thats what it was like at home also, she had a couple of days where she would be laughing running around the house then out of the blue she start crying and was just unhappy. We thought that maybe it was her teeth but when I looked in her mouth everything looked ok. So even though I didnt think it was anything to do with her heart I called her cardiologist to see if there was anything they could think it was. They said that they didnt believe it was anything that related to her heart but that since she had significant aortic stenosis they would be happy to take a look and make sure. After the weekend when she was fighting the fevers we took her to the pedis office and they found nothing wrong with her. So who knows what is going on with her, and with her being non verbal it is harder to find out what is wrong. 

On too non Aly news. With the holidays coming I started working again so that we will be able to spoil our families with gifts. I like cause I am only working part time, so I can still spend time with my family. Come January I will be also going back to school. It has been something that has been on my mind lately and I just believe it is time to finish this chapter in my life. I think that I will be going back to for a two year degree in early childhood education with some training in special education. I have always loved children and I think that this is the best thing for me.

As I said before, I now have my laptop back so I will be able to post some more about Aly and the family.

PRESCHOOL and other things

Where does time go?!?!?! it doesnt seem like it has been that long since I made the last post!

Ok so whats been going on??

Ali has been doing SOOOO good with her speech and language. She has learned some new signs. On top of the all done, please, and more. She has learned eat, thank you, and tickle. I love it when I am sitting on the couch and she comes up to me with the biggest smile on her face and signs for tickle. She has also been doing good on her communication skills, example: I was painting my nails one night and she came up to me and signed please and then looked down at her feet. Something that else I never noticed till just recently, she never made a sound when she was unhappy. Now she does it all the time lol. She still doesnt say no or shake her head at anything, but she has started to grunt or scream her displeasure at things.

She has started school the 2nd of this month. She goes to school Monday thru Thursday, from 12:00 to 3:15. The first day we had some problems with the school bus but after that things have been good. Granted its only been 3 days but she has taken to getting on the bus and off the bus without any problems. Both her teacher and the aide have told me that she is such a firecracker and yet such a sweetheart. It turns out that Ali is the only non verbal child in her class. Everyone believes that by the end of the school year she will be talking alot more since she is around other children that talk. 

A few days ago I signed Ali up for a running buddy from a group called I run for Micheal. Its a neat group that assigns a running to a child or adult that is disabled and are not able to run themselves. The disabled person talks to the runner and gives them the encouragement and someone to run for. Now Ali has no restrictions and is asymptomatic but I just like the fact that we can give someone else something to push for and that Ali can learn from someone. Then you also have the fact that at anytime something could change and Ali may end up on restrictions and wont be able to enjoy running or anything like that. It sounds bad to put it like that and I NEVER want anything to happened to my baby girl, but I look at things from the stand point that I almost lost my daughter at such a young age that you never know whats going to happen. I dont let the what if's run my life but I keep them close and keep myself prepared for anything. 

The only other news I have is that my sister gave birth to her second baby girl on Friday. Her name is Talia Rose and she was 7 lbs 10 oz and 20 1/2 inches long.

 

Some great achivements!!

So Ali has been blooming with her speech! She has gone from a 4 word vocabulary to a 15 word vocabulary.  The goals that her speech therapist has set for her she is already reaching.  She has said on multiple times the new speech therapist is going to have to set new goals for the school year. I am starting to believe that me staying home was truely the best decision I have ever made.

On a different note, we saw the sleep specialist and they checked her ferritin levels. It tuens out that if feritin levels are low they can cause issues sleeping and can cause someone to twitch and jerk in their sleep. Well Ali's levels were 19.7, they want them to be 50 or 100. So we have started her on iron supplements and we go back in 2 months and see were her levels are at then.

cardiologist, neurologist, IEP, and achievements... plus more

Taken last month

So last month we had a lot going on. Everything from my parents moving to me leaving my job to Ali having another EEG and getting referrals to 2 new doctors.

Lets start with the cardiologist, Ali went to her 6 month check up on the 10th. Good news? hell only news? she doesn't have to go back for a whole year! yep that's right. Ali is doing so good that Dr. Loker told us that we don't have to come to see him for a whole year! I was hoping to have what her pressure gradient was but he never sent out the normal letter that he does. Oh well, my baby doesnt have to go back for a whole year, doesnt get any better then that!

So around the end of March Ali was having issues that looked alot like seizures activity. She was doing some crazy jerking movements and tremors. Around the same time that this was going on she was having major issues sleeping through the night also. I happened to get the jerks on my phone so I took her into the doctors to show them and find out what would be causing Ali not to sleep through the night. They ordered another EEG and sent refarrels to both a neurologist and a sleep specialist. We had the EEG done and everything came back good on that. We go to the sleep specialist on the 20th of this month and we saw the neurologist last month. The neurologist gave her the all clear on her end. She doesnt beleive that Ali has any neurological problems at all. The jerking and tremors have actually gone away now too. I believe it has to do with the facted that she wasnt sleeping that good at all. Of course now that we are seeing a sleep specialist she has started to sleep through the night. 

On the 25th of last month I went to Ali's IEP meeting. Starting next fall Ali will be going to preschool 3 hrs a day for 4 days a week. They are going to be putting her into a Special Ed Class, so that she can get more one on one learning. Even though she has been doing great with speach she is still very behind. On the AEPS Social- Communication Subtest Ali scored a 2, the excepted minimum for her age group is a 15. The things that they are going to be working with her next year is for her to keep eye contact with someone that is talking to her. Another thing they want her to be able to do at the end of the school year is to engage in activities requiring joint attention and turn taking. Ali will be also getting OT at preschool, they are going to be helping her with her attention span and helping her transition from something she wants to do to something that her teacher wants her to be doing.

I also had a talk with her occupational therapist and the neurologist(at different times) about the chances of Ali having autism. Both have told me that yes she may show some signs but that she doesn't have autism. What she does have is Sensory Processing Disorder, SPD, and that autism and SPD overlap each other greatly. Ali is was you would a seeker, she finds way to get input. Weather it being standing on her head, spinning in circles, and jumping around on things. She also suffers from sensory overloads, basically it looks like she is having a major temper tanturm. If there is to many people in one area or if a lot of people are talking and walking around with the tv on top of them. It can become to much for her to handle and she starts to cry. She will continue to cry until we either leave or I take her to a room that has the lights off and just rock with her. 

Its because of this and because of other personal reason I decided it would be better if I was at home with her. So on the 25th of last month I left my job. I want to be able to work with her and really give her the attention that she needs to help her far in school. I know what it was like to get extra help in school and I felt stupid and refused to take the help. If she needs it, then I will be there telling her that she has nothing to stupid about or any of the feelings I went through. Anyways got off topic for a minute there. Back on track, I believe this is the best thing, and I have noticed, and so have others, that since I have been home Ali seems more out going and happy. Now she has always been a happy child but she just seems to be even more happier. I also have been wondering if me being home has helped with her sleeping at night.

Now on to all of her achievements!!!! 
So some may find these to be not so big of a thing, but when it comes to her they are the first of many that I will be excited about. So the biggest one I have to say is, she has two new words she says. They are go and up, she also has her own sign for please and more. She has been working on not having her binky all the time and she has been doing wonderful. She only gets it when she goes down for a nap or bed time. When I show her it she will grab her blanket and either sit up in my lap or walk to the bedroom so that she can go to sleep. She has also started to listen to one step instructions, and to go along with that one she has also started to help pick up her toys at the end of the night. 

So all in all everything has been going great when it comes to Ali. She is growing like a weed and everyday she is showing me something new. If you are interested in learning about SPD here is a website that will help you understand it.    http://www.sensoryprocessing.yolasite.com/

On to non Ali related news. As I said early on April 23 my parents moved out of state. They wanted to try somewhere new so they moved to down to the south west. I really dont like that they are so far away from me but I know that it may actually help my mother in the long run with her health. My sister is going to be having another little girl in September.

AHHHH it's been so long!!!!

I can't believe I havrnt been keeping up in her blog! I have been working a lot more and it just slips my mind. Again I am writing this on my phone so if there are mistakes that will be part of the problem.

Ok so last left off, we were trying to figure out where aly was with her developmental problems. After they did a more in-depth eval we have found out that developmentally Aly is around 17 months old, her receptive communication is 16 days old, and then her expressive communication is 2 months old. We have speech out once a month, ot out once a month and then she has her home teacher come out twice a month. She also has group twice a week. Where language wise she is still very behind we are seeing a difference. She is making more vowel sounds instead of just grunts and mmm sounds. Her first actual word was hot, and just last week she called me ma for the first time.

We finally had her sedated hearing test done and her hearing is prefect! So that shines light on what could be behind her other issues.

This and that

So before I actually begin I want to say that I am typing this on my phone and if there are mistakes thats why.

Ok so were to begin....

Well I am not sure if I have mentioned this or not but early on came out and evaluated Aly. She is very slightly delayed in her motor skills, but the main concern they have is her language skills. She has a hearing test this Wednesday to see if that may be part of the problem. They also said she needs further evaluation, but they cant do that till September. We go to play dates ever Tuesday for an hour.

Some may find this next thing not so big but to me it is. Yesterday Aly actually an knowledge her cousin. They are around 15 months apart and ever since Lily was born Aly wanted nothing to do with her. Also ignored her and acted like she wasnt there. Yet when they were over yesterday Aly was hugging on her and was trying to pull Lily to were she wanted. It made me so happy seeing her do that.

Aly has also learned how to take off her clothes and diaper. She loves to take them off and run around naked.

I know every child learns at their own pace, but seeing Aly doing stuff that she should have been doing months ago makes me so happy. I get excited over little things that some would think odd.

On to other great news!!! After 6 years together Rob and I have finally gotten married! Its so great to finally have the same last name as Aly.

Alyzea's cardiologist Appointment

I have mentioned how much I love Alyzea's cardiologist and his office? I swear that everyone that is in that office are always so nice and answer any questions that we may have. 

So today Alyzea weighs 24lbs and 11oz, and is 2'9''. So her echo was good, her pressure gradient is around 35. Today though her EKG was showing that her QTc was high, she was up in the 400's with that.  Because she has never had a problem with her EKG's before he order for her to have a Holter Monitor on for 24 hours to see what is going on. Till he finds out what is going on she is not allowed to have any Zpacks for infections. 

On a another note, we found out today that she actually has a unicuspid valve instead of a bicuspid valve. A while ago I mentioned to him that I thought that it was a unicuspid valve, but he had told me no it wasnt. It turns out that Mott's says it is and when he looked again it is a unicuspid valve, but sometimes it looks like a bicuspid valve. He actually showed me on the echo today. 


We go back in 4 months to see how things are going. 

18 month wellness check

Today we had Alyzea's 18 month wellness check(at 19 months). Everything physically is going good. She weighs 24lbs, and is 31.75 ins long. 

Right now the main concern that the doctor has is her developmental issues. So the doctor wants her to have a hearing test and have early on come in and evaluate her. So its a waiting game. 

Next month we go to the cardiologist and see how well her heart is doing. 
(really short post this time lol)
 

ROAD TRIP!!!!! and other things

This is when we found out that she was allergic to Cedfinir also

So some more news on the allergic reaction front. It turns out that Aly is also allergic to the Cefdinir along with the Amoxicillin. Since she has had an allergic reaction to both Penicillin's and Cephalosporin's the doctor has told us that she cant have any of these antibiotics.

Aly in purple, Lily in pink and their great grandparents

Luckly we got her reactions under control in time for us to take a trip down to IN to see my grandparents. It was just my mother, sister, her daughter, Aly, and myself. An all girls trip! It was actually alot of fun. The two main reason for taking the trip down was A) for my grandparents to meet my sisters daughter and B) To spend some time with our grandfather who's health has been on the rocks. I was a bit bummed that Aly really didnt want nothing to do with my grandfather but she has only met him twice her whole life so what can you do? 

A then and now pic of Bella

 So we have also had Bella for almost 7 weeks now and its been going great. She does so good with Alyzea! Aly is in her face all the time or pulling on her tail and Bella just takes it. Bella also gets so happy to see Aly when we get back from some where or even when Aly gets up for the morning or from her naps.

Ear infections, pneumonia, and allergic reaction OH MY!!!

Yep just like the title says Aly has had all three in a week.

Sitting with mommy and Bella

Last Wednesday morning at 12 am Aly woke up majorly congested. It was so bad she ended up getting sick and bringing up alot of the drainage she had. Mommy and Aly also ended up sleeping in a chair because she just couldnt sleep in her crib even with it prop up. She also ended up getting a fever around noon that day. So I took her to the ER because we couldnt get into the doctors. At the ER we found out that she had a double ear infection and an URI. They did a Chest Xray and the radiologist thought she may have the beginnings of pneumonia but the ER doctor told me that she didnt. We were sent home with Amoxicillin and told to follow up with her family doctor.

Because I didnt feel comfortable with someone saying she had pneumonia and then someone saying she didnt I called her family doctor and got her an appt. for Thursday and I also got a copy of her Xrays to have her family doctor look at.  . All Wednesday she kept fighting her fever. It didnt seem to want to go below 101 and the highest her temp got was 103.7. She wasnt sleeping good at all and so her and mommy slept in a chair again. When we got to the doctors I gave the nurse the CD and asked if she could have the doctor look at the xrays before she came in. Well the doctor came in not long after that and told us she didnt need to look at the CD because the final report that came in said she did have pneumonia in her upper left part of her lung. She told us to stay on top of the tylenol and motrin for 24 hours straight. Tylenol every four and motrin every six hours, and if by friday at 4 pm it still hasnt gone down we were to call the office back. Well that night her fever broke and we were able to move to our beds in the early morning. 

All weekend long she has been doing great. She has been her happy little self and with how she has been acting you would never had known that she was sick. 

She had a follow up today at her doctors and when we got there we noticed that Aly had a rash all over her stomach and back. When the doctor got into the room we showed her the rash and it turns out that Aly is allergic to Amoxicillin. So she was taking off of that and put on Kelflex(sp?). Her lungs sounded great so the pneumonia has pretty much cleared up, but her right ear drum is still bulging out so her ear infection hasnt cleared up in that ear yet.  

Long over due post.

Wow I cant believe it has been so long since I made a post on how things have been going!

So alot has happened the last few months. Some sad and some good. Where to start off?? well lets do the bad first.

Alyea and her Grandpa

On March 3rd Alyzea lost her grandfather after a month long battle in the hospital. He went in to have a cath put in and two days after that he had a heart attack. When he was in the hospital they also found out that he had phonmuna(sp) in one of his lungs. Two weeks later after they had done a heart cath to see the damage the heart attack had done he suffered from a stroke. It was then we also found out that he had Cdiff and they had to put a feeding tube in his stomach. After about a week in the hospital they moved him to carelink. For a bit there he was able to do the therapy they wanted him to do, but then his body stopped doing anything. The Cdiff wasn't clearing up, dialysis was making him weaker  and his food wasn't digesting like it should have been. When his family made the decision to stop dialysis and make him a DNR it didn't take him long at  all to pass. From what we have been told he didn't suffer and that make us feel just bit better. Both Rob and his family are taking it one day at a time. His mom is so use to taking care of his father that she hasn't known what to do. 

Bella not long after we got her

So a week later we got the family a puppy. They say they got it for Alyzea and that it was her puppy but I believe its for all of them. Her name is Bella and she is a 15 week old beagle/black lab mix. I couldnt have asked for a better puppy for the family. She does so good with Alyzea and she just loves Bella.

Because of what had happened to his dad Rob never went back to work. He has been taking care of his mom and at the time his dad also. So now he is a Stay at home dad. Around the time his dad had is stroke I started working at Allegiance Health Hospital as a Diet Aide. I really love this job, I help paitents order food and bring it to them when it comes up from the kitchen. It is actually a job I like going to everyday, and working here I found out that the hospital has taking to doing a pulse ox test on the all the newborns 24 hours after they are born to screen for heart defects. I was SOOO happy to hear this.... 

How big Alyzea has gotten

GREAT NEWS!!!!

Going to see Santa

Wow I have been so busy lately that I just havent had time to do what I normally do. So I havent had time to get on here and tell the great news about Alyzea's cardiolgist appointment.
We saw Dr. Loker on the 4th of this month. Since they did a echo on her back in October, when we were in the hospital they didnt do one this time. He came in and told us that Alyzea's pressure gradient went from 40 to 33! It was so awesome to hear that, All they told us when we were in the hospital was that the echo came back good. Dr. Loker happened to be out of the office at the time so thats why we didnt see him when we were there. He also mentioned that when they echo she was running a fever and was sick, and that there is a chance that her gradient might actually be lower then what it was at the time of the echo. The other great news we got that day was we have been graduated to 6 month appointments! She has been doing so great I am so proud of her. 

Holding both the girls

Ally trying to rock Lily

In other news, rob has been doing great after his surgry. He has some pain in his lower back but we think that might be because he cant sleep the way he normally does at night. My sisters baby has also been doing great. Ally and myself spent the night with the two of them at our parents house the other night. I helped my sister with the baby giving her some rest. I have been nerves that Ally might be mean to Lily but she did great with her. We got Lily's newborn, Ally's 1 year, and the girls Christmas pictures done when we were together. We took the girls to see Santa but Ally wanted nothing to do with the man.

Introducing Miss Lily!!!!

So my sister had her baby on Nov. 28th! It was the greatest thing being there with her when she was in labor. Dee did have some complications, she was in labor for over 24 hrs and she only dilated to 5 1/2, and that is with pitocin(sp) running for 4 hours. The baby's heart also was dropping to around the 86 so they decided that a c-section would be the best route to take. Dee's boyfriend is not someone who can handle blood so he ask if I could go in with Dee. So I got to go in with her and be the first person to see and met Lily. Being in the room when she was having a c- section is something I never thought I would do, and without a doubt I would do it again. It turns out that Dee's hips are to narrow and Lily wouldnt have been able to be born naturally.
Both mom and baby are doing great, my sister is acting like nothing happened to her and has been handling the pain great. All of baby's test have come back great and they made sure to check her heart which also has come back good. That right there takes alot off my shoulders. Knowing that my sister wouldnt have to go through what I went through.
The other thing that keeps playing in my mind is that fact that me and my sister both have a beautiful baby girl. It's so unreal thinking about her and me having children.

Just thoughts and random things

So alot have been going on but it is not based on Alyzea so much. She was in the hospital over night for a fever and an ear infection. The only reason why we had to stay was because her heart rate was up and the ER doctor wasnt sure if she felt comfortable sending us home. As much as we dont like staying at hospitals I would rather be safe then sorry. She has also taking off walking like she has been walking for years. She is so small and cute walking like she does.

As I said alot has been happening. Rob aka daddy, had a cervical fusion done last monday. Everything went great and he has been doing good. He is not liking the fact that he cant hold his baby. When I took Alyzea to see him in the hospital she wasnt happy in his room, so I am thinking that she has some anxiety to hospitals, can you really blame her?

Sometime this month my sister is having her baby. I cant wait to meet Lily, it is going to be so cool having a niece around here. I really wish that my other niece and nephews could be around more.

So I have been thinking about doing something for CHD awareness week, I know that its not till February but I got to start it now so that when that week comes I can have it done. I am thinking that I am going to collect pennies from now till then, once that week comes I am going to turn in all the pennies and the money that I have collected I am going to give to Mott's as a donation. I get so tired at seeing things for cancer, and stuff like that but nothing on CHD. DONT GET ME WRONG, having a child going through anything like cancer or a heart defect is wrong, and children shouldnt have to go through anything like that. I just hate seeing that they will promote other things but people never really promote for CHD, but I cant sit here B*t*hing about it, I have to get up and start doing something. Its just going to be hard cause I have always been a follower not a leader.

HAPPY FIRST BIRTHDAY ALYZEA!!!!!

Alyzea and her dad

Well her actual birthday is tomorrow but we had her party today. It was a bit depressing cause the weather wasnt that good, but we made the most of it and it turned out to be a great day. I really didnt have to worry to much about Alyzea getting cold because she holds heat like her dad does.

 She got a lot of clothes and a good amount of toys. She loved smashing the cake! she didnt eat to much of it but she just loved playing with it. What I really loved about today was my close friend has a disabled son, and Alyzea just loved him. When I was talking to him she just had to come and sit with him and me. There was a time where she actually wanted to sit on his lap. When we put her in his lap she leaned down and gave him kisses. I just cant believe that she is turning one tomorrow! I love her so much....

Giving Kisses to Noah

Getting all over him

Sharing our cake together

mommys little monkey

I love this pic of her and her dad!

She has also started to walk by herself. I my self consider her to be a walker. She crawls a lot still but she is taking about 15 to 20 steps at a time now. She is also pulling herself up and instead of dropping to her knees to crawl she has be just turning around and walking instead.

Again the pics dont want to go in any kind of order!!! sorry!